When asked about achievements in her life, Diana Lopez of San Antonio, Texas, didn’t have to think long about her answer. Surviving cancer. Lopez was diagnosed with breast cancer at age 42. Like many of those who are diagnosed, it was a shock to Lopez and her loved ones. “At the time I was scared because you think, they tell you, ‘You have cancer’ and you are like, ‘I’m going to die,’” Lopez said. With the help of a clinical trial – a study with volunteers that helps researchers learn how to slow, manage, and treat diseases like cancer –Lopez stayed strong and continued to fight, no matter the obstacle.
A Cancer Diagnosis and its Impact
Lopez discovered a lump on her breast. At first, she thought nothing of it. “I wasn’t hurting or anything. It ...
Timothy Leech just celebrated his 40th birthday when he got news that changed his life. Timothy was diagnosed with Stage 4 squamous cell carcinoma, a form of skin cancer, in 2014. Doctors told him he had only a short time to live. “I freaked out, for sure. I thought I was going to be gone real quick,” Timothy said. But, today, eight years later, Timothy is a cancer survivor. He credits his wife, Katie Leech, his medical team, and a clinical trial for getting him to where he is today – not entirely cancer-free but “so small that it’s immeasurable.” A clinical trial is a research study that helps researchers learn more to help slow, manage, and treat diseases like cancer. “It was very much like, this [clinical trial] is the last roll of the dice here,” ...
Clinical trials can help researchers learn to better treat asthma – but they need diverse volunteers. Black and Latino children who have severe asthma, are prone to asthma attacks, and live in low-income urban neighborhoods are underrepresented in asthma treatment clinical trials, even though they are more likely than whites to face health inequities that can exacerbate asthma symptoms. Fortunately, a recent National Institutes of Health (NIH)-funded clinical trial with mostly Black and Latino children found that a monoclonal antibody – mepolizumab – can decrease asthma attacks by 27%. Antibodies are made naturally in the body to fight infection. A monoclonal antibody is made in the laboratory and administered to patients to treat a variety of diseases and infections, ...
Willie Heard is a man of faith. His faith stood strong even after he got tragic news in September 2013. Heard was diagnosed with Myelodysplastic syndromes (MDS), a group of bone marrow cancers in which the bone marrow does not produce enough healthy blood cells. His cancer diagnosis came just months after retiring from his job at USAA and just shy of his 67th birthday. “I’m a religious person and a minister and, I think I remember telling the doctor, I said, ‘Doctor you do what you do, I’m gonna let God do what he does,’” said Heard, a resident of San Antonio, Texas. “[The cancer diagnosis] was a surprise to me, but I’ve always been a person that don’t really worry about stuff I can’t control, so I don’t let that bother me.”
Heard’s Decision to ...
Leonel Rodriguez got some terrible news in November 2019. Doctors diagnosed Rodriguez, a South Texas resident, with mantle cell lymphoma – an aggressive, rare form of non-Hodgkin lymphoma. After going through several treatment options, his disease persisted. He soon learned about a potentially beneficial clinical trial for lymphoma patients at the Mays Cancer Center at UT Health San Antonio. Clinical trials help researchers learn how to better slow, manage, and treat diseases like cancer and Alzheimer’s. “[Clinical trials were] the best way because, you know, I feel good now with the treatment,” Rodriguez said. “Now I feel I've been feeling well, and well, well.”
Rodriguez’s Decision to Participate in a Clinical Trial
Rodriguez first experienced problems in ...
Clinical trials can have big benefits. They help researchers learn more to help slow, manage, and treat Alzheimer’s and cancer for ourselves and our abuelos, moms, dads, and others we love. So then why don't many Latinos join? To address this issue, you’re invited to join our Zoom webinar — Why Should I Think about Joining a Clinical Trial? — at 6 p.m. CT on Wednesday, Aug. 17, 2022. Webinar speakers Dr. Adolfo Diaz Duque of UT Health San Antonio and Dr. Bárbara Segarra-Vázquez of the University of Puerto Rico will help health care professionals and the Latino public understand clinical trial processes, explore trials as treatment options, and share testimonials of real Latinos who have benefited from trials. Panelists will also cover the barriers that prevent ...
Clinical trials are responsible for many of today’s life-saving procedures and treatments. But finding and enrolling in clinical trials can be difficult process, especially for Latinos who may experience language barriers or lack of information. In response to these challenges, the National Heart, Lung, and Blood Institute (NHLBI) recently updated their search engine to better help patients find and enroll in an NHBLI-sponsored clinical trial. Available in Spanish, interested participants can now browse for clinical trials by age group, condition, and location. The search engine also includes an overview of how clinical trials work, who can participate, and benefits, risks, and safety measures of trials. Diseases and conditions studied in NHBLI-sponsored clinical trials ...
Latinos represent less than 10% of volunteers in cancer clinical trials. The lack of Latinos in clinical trials makes it harder for researchers to find treatments tailored for this group — which makes up 18.5% of the U.S. population and a diversity of heritages. This is why Drs. Amelie G. Ramirez and Patricia Chalela of UT Health San Antonio identified barriers and strategies to boost Latino representation in clinical trials in a new commentary in JCO Oncology Practice. It will take more than simply raising awareness of clinical trials to everyone. "To achieve equitable participation of Latinos and other underrepresented groups in clinical research, we need comprehensive approaches that address social and contextual barriers to participation," said Ramirez, leader of the ...
The National Institute of Aging (NIA) is seeking comments and suggestions on how it can implement community-based research networks to increase diversity in clinical trials for Alzheimer’s disease and related dementias (ADRD). At Salud America!, we believe that diverse representation is critical in Alzheimer's clinical trials to ensure that health and medical discoveries are equitable for diverse populations. This means increasing diversity among research leaders and clinical trial participants and establishing sustainable connections with Latino communities and other communities of color who have historically been underrepresented in medicine. If you agree, you can endorse Dr. Amelie Ramirez’s comment to NIA. Responses will be accepted through Saturday April 9, ...
