In recent years, researchers have made a larger effort to tap into previously underrepresented communities, such as communities of color, to create more inclusive research that benefits everyone. But many people still have deep-rooted mistrust of research. And not all researchers who work with these communities end up bringing the benefits of their research back to boost the health of those communities. The PATIENTS Program at the University of Maryland School of Pharmacy is attempting to rewrite the narrative and give researchers, patients, caregivers, and others the tools to provide a continuous patient-centered approach to research. The PATIENTS Professors Academy is a free, virtual training course centered around improving health equity and the health outcomes ...
For the last several years, the National Institutes of Health’s (NIH) All of Us Research Program has endeavored to collect the health data of over 1 million Americans to ensure healthcare works for all of us. Are they close to 1 million participants? How has it helped boost research? Let’s look at five notable milestones the program has reached in its mission to build a health data network that looks like all of us. 1. Increasing the Diversity of Research Participation With help from local community partnerships, including UT Health San Antonio, across the country, over 790,000 people nationwide have decided to join the program’s expansive and inclusive research network, the program announced in a recent news release. In addition, over 540,000 ...
For the last few years, the National Institutes of Health’s All of Us Research Program has mounted an unprecedented effort to collect health data from 1 million people of all ages and ethnicities across the country for use in impactful scientific research.
In fact, the data has led researchers to a shocking discovery — 275 million previously unknown genetic variants, according to a recent news release.
Nearly 4 million of the variants are in areas that may be connected to risk for disease.
The variants, uncovered using data shared by nearly 250,000 All of Us participants, put researchers in a position to better understand genetic influences on health and disease, especially in diverse communities often left out of research.
NIH reported that half the genomic data came from Latino, ...
Half of all health care workers believe racism against patients is a major problem or crisis, according to a new study by The Commonwealth Fund and the African American Research Collaborative (AARC).
In the comprehensive study, Revealing Disparities: Health Care Workers' Observations of Discrimination in Their Field, researchers surveyed 3,000 health care workers from different ethnic backgrounds, ages, facilities, and areas of care about their thoughts and experiences with patient discrimination.
“Discrimination based on race or ethnicity presents a serious barrier to obtaining high-quality, equitable health care. Because health care workers bear witness to the treatment of patients in the course of their jobs, they can provide a fuller understanding of how and where discrimination ...
Several months ago, the Association of American Medical Colleges (AAMC) Center for Health Justice sought public responses on important health equity issues in the U.S.
Now the poll results are in – and you can use the data for your own research!
AAMC is seeking your proposal, now through March 4, to use the new polling data to answer important health equity-focused questions and inform health policy.
“Improving community health requires accurate and relevant data to identify population health inequities, develop locally relevant interventions, and track progress toward health equity,” the AAMC said of their work. About the New Poll Data on Health Equity
The new poll is part of AAMC’s effort to collect evidence and information on health inequities, which includes regularly ...
The Healthy Americas Foundation (HAF) is giving a few scholars funding to research chronic diseases in Latino communities with help from the All of Us Research Program.
The new funding builds on HAF’s effort to improve Latino health by supporting researchers.
In 2022-2023, Healthy Americas Research Consortium awarded $10,000 each to 10 scholars to help understand cervical cancer screening issues, experiences with accessing screening, and ways to increase Pap and HPV screening in Latino and other underserved communities.
Projects utilized data from the National Institutes of Health’s (NIH) All of Us Research Hub.
NIH’s All of Us Research Program is a national campaign to collect and study data from 1 million or more Americans to help inform studies and accelerate research that ...
This year, over 2 million American will get a cancer diagnosis, including many Latinos.
As one of the leading causes of death in Latinos in the U.S., one in five men and one in seven women who are Latino will die from the disease.
Cancer also takes a heavy financial toll on patients, whose survival is dependent upon a variety of factors, including access to quality, often costly, healthcare treatments.
Let’s explore the cost burden of cancer, and what to do about it. The Cost Burden of Cancer
In 2018, patients and their families paid $5.6 billion out of pocket for cancer treatments, such as surgery, radiation, and chemotherapy drugs, according to the American Cancer Society (ACS). Americans spent a total of $183 billion on cancer-related healthcare in 2015 - an amount ...
Everyone deserves health equity – a fair, just opportunity to be their healthiest.
But the reality of U.S. healthcare is that people of color, including Latinos, face higher risk for life-threatening diseases than their white peers due to systemic inequities in education, housing, food, healthcare, and more.
While these inequities threaten health outcomes, efforts are rising to close the gaps.
Genentech, a member of the Roche Group, along with The Genentech Foundation, has been on the front lines of the health equity crisis, advocating for equitable treatment and representation for the last several years.
This includes the company’s multimillion-dollar Health Equity Innovation Fund.
Launched in 2019, the Health Equity Innovation Fund has given grantees the funds to address key ...
Where you live can have a big impact on your health. In fact, our health is influenced by a variety of non-medical factors, such as the conditions in which we are born, grow, live, work, and age. These conditions are known as social determinants of health (SDoH). Addressing SDoH is key to improving health for Latinos and all people, said Dr. Amelie Ramirez, leader of Salud America! at UT Health San Antonio, in a panel presentation on Dec. 5, 2023, at the San Antonio Breast Cancer Symposium. "What we’re finding is that these inequities in SDoH can create social needs that negatively impact our health," Ramirez said.
Screening for Social Determinants of Health (SDoH)
Studies suggest that SDoH accounts for between 30-55% of health outcomes. SDoH also influences individual ...
