In recent years, researchers have made a larger effort to tap into previously overlooked communities, such as communities of color, to create more complete research that benefits everyone. But many people still have deep-rooted mistrust of research. And not all researchers who work with these communities end up bringing the benefits of their research back to boost the health of those communities. The PATIENTS Program at the University of Maryland School of Pharmacy is attempting to rewrite the narrative and give researchers, patients, caregivers, and others the tools to provide a continuous patient-centered approach to research. The PATIENTS Professors Academy is a free, virtual training course centered around improving health and the health outcomes of overlooked ...
U.S. Army soldier Tony Rentas, a native of Puerto Rico who dreamed of serving in the military all his life, had a seizure while on a mission in Kosovo. Tony was diagnosed with a low grade glioma, a rare type of brain tumor. He had no idea what a low grade glioma was. So, he started Googling. He found little that helped him understand this diagnosis and what it meant for him and his familia, and even less was available in Spanish. That is why Tony is sharing his story and participating in the International Low Grade Glioma Registry, which hopes to learn more about the best ways to treat these tumors across different groups of people, including members of the Hispanic/Latino community. “One of the biggest things that I wanted to do is help people as much as I can,” Tony ...
Durante su niñez en Puerto Rico, Tony Rentas soñaba con unirse al ejército de Estados Unidos. Quería servir a su país, dar un buen ejemplo a su hijo, y asegurarse que su familia tuviera el cuidado adecuado. En el 2009, se unió al Ejército de los Estados Unidos, haciendo realidad su sueño. Tony ejerció como especialista de inteligencia militar. A lo largo de una docena de años, fue desplegado dos veces, viajó alrededor del mundo, formó grandes amistades, experimentó diferentes culturas, ayudó a personas y proveyó para su familia. Luego, obtuvo una desgarradora noticia. Después de sufrir una convulsión del lóbulo temporal, Tony, -esposo y padre de dos hijos- fue diagnosticado con un glioma de bajo grado, un tipo de tumor cancerígeno en el cerebro, en junio del ...
Growing up in Puerto Rico, Tony Rentas dreamed of joining the U.S. military. He wanted to serve his country, set a good example for his son, and make sure his family was taken care of. In 2009, he joined the U.S. Army, making his dream a reality. Tony served as a military intelligence specialist. Over a dozen years, he deployed twice, traveled around the world, made great friends, experienced different cultures, helped people, and provided for his family. Then he got some harrowing news. After suffering a temporal lobe seizure, Tony – a husband and father of two children –was diagnosed with a low grade glioma, a type of cancerous brain tumor, in June 2020. “I remember walking out of that appointment, sitting in the car, just trying to process things. A couple of tears ...
Often, Alzheimer’s and dementia caregivers put the needs of the person they are caring for above their own — neglecting their physical, emotional, and mental health in the process. While seen as a selfless act, when left unchecked, it can lead to depression. That’s why researchers at Texas Tech University are giving informal caregivers caring for a loved one with Alzheimer’s and dementia an opportunity to reduce their stress levels by offering free telehealth therapy. As part of the research study, eligible participants will meet once a week for 12-16 sessions with a therapist and fill out questionnaires and surveys before, during, and after therapy. These surveys are spaced out and only take 30 to 45 minutes to complete online, by mail, or over the ...
Did you know about 90,000 people are diagnosed with a primary brain tumor every year? Similarly, over 1.3 million people in the United States are living with a primary or secondary/metastatic brain tumor. For ourselves, our familia, and our comunidad, we should know a few important things about brain tumors so we can help all those impacted by a tumor diagnosis. Thankfully, the American Brain Tumor Association (ABTA) has amazing resources to help. Let’s explore and learn! Access this resource in Spanish!
1. Know the Types of Brain Tumors
A brain tumor is a growth of abnormal cells that have formed in the brain. But not all brain tumors are the same. “Some brain tumors are malignant (cancerous), while others are not (non-malignant, non-cancerous or benign). A ...
Dr. Amelie G. Ramirez, a native of Laredo, Texas, and leader of Salud America!, delivered the keynote address at the 2024 Commencement of the University of Texas Rio Grande Valley (UTRGV) School of Medicine. Ramirez is an internationally recognized researcher in cancer and chronic disease health challenges among Latinos and all people. At UT Health San Antonio, she is chair and professor of Population Health Sciences at UT Health San Antonio, where she also is founding director of the Institute for Health Promotion Research and associate director of community outreach and engagement at the Mays Cancer Center at UT Health San Antonio. Over the past 30 years, Ramirez has led over 100 studies and programs to reduce health issues, improve health, and increase participation in ...
Every year, 240,000 women are diagnosed with breast cancer in the US, according to the Centers for Disease Control and Prevention (CDC). That’s why healthcare providers recommend women ages 50 to 74 get a mammogram – an X-ray of the breast that can help screen and diagnose cancer – every two years. However, only about 3 in 4 women in that age group has had a mammogram in the past two years, as of 2022, according to a new study by the CDC. For women who experience health-related social needs, even fewer haven’t gotten one. This is alarming because, while mammograms can reduce the number of breast cancer deaths by 22%, this cancer is the top cause of death among Latinas. Let’s explore the non-medical drivers of health that are creating challenges to ...
Sadly, breast cancer impacts our Latina community. Latinas are more likely than White women to be diagnosed with triple-negative breast cancer (TNBC), an aggressive type, according to the Breast Cancer Research Foundation. Join us for “Making Your Voice Heard in Triple-Negative Breast Cancer Treatment,” our 30-minute webinar that is available on-demand starting on Wednesday, April 17, 2024, in English with Spanish subtitles. Hear the latest TNBC treatments and how Latinas deal with the difficult cancer journey. A doctor who specializes in treating breast cancer, a nurse practitioner, and a patient with breast cancer will explain how to manage side effects, connect with others in the breast-cancer community, and be your own best advocate. Webinar speakers include: ...
