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Launched in celebration of Lupus Awareness Month in May, Lupus Out Loud (LOL) is a new online movement and video developed to encourage people with lupus to speak “out loud” about their symptoms.
The movement was inspired by the results of a recent Roper survey that found 52% of lupus patients surveyed reported that they minimize their symptoms when speaking with their doctor.
Lupus facts:
- Prevalence: About 90% of people diagnosed with lupus are women.
- Prevalence: Lupus is more common in women of African American, Hispanic, Asian, and Native American descent than in Caucasian women.
- Symptoms: Affect multiple parts of the body, range from mild to severe and may come and go over time.
- Diagnosis: Challenging and may take years and a number of doctor visits to confirm.
Patients participated in the filming of LOL “Voices”, which highlights how to communicate more effectively with physicians, friends and family, and the benefits of talking frankly.
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