Of course, no one wants to hear they have cancer. But if you or someone in your familia has a brain tumor, it is natural to wonder what life will look like. This is what we call “quality of life” (QoL), or an individual’s sense of well-being and ability to enjoy and participate in life. “For those living with a brain tumor, QoL may encompass a wide range of physical, psychosocial, and emotional concerns stemming from loss of functionality and changes in personality,” according to the National Brain Tumor Society (NBTS). From rehabilitation to mental health to return-to-work resources, let’s dive deeper into QoL and what it means for someone with a brain tumor. Access this resource in Spanish!
Facing a Brain Tumor Diagnosis
A brain tumor or other cancer ...
Por supuesto, nadie quiere escuchar que tiene cáncer. Pero si usted o alguien en su familia tiene un tumor cerebral, es normal pensar cómo será la vida con este diagnóstico. Esto es lo que llamamos “calidad de vida”, o el bienestar y capacidad para disfrutar y participar en la vida. “Para aquellos con un tumor cerebral, la calidad de vida puede incluir un rango amplio de dificultades físicas, psicológicas/sociales, y emocionales relacionadas a la pérdida de ciertas funciones y cambios de personalidad” según la Sociedad Nacional de Tumores Cerebrales (NBTS/SNTC). Desde la rehabilitación hasta la salud mental y recursos para volver al trabajo, profundicemos en la calidad de vida y qué significa para alguien con un tumor cerebral.
Enfrentando un ...
For the last several years, the National Institutes of Health’s (NIH) All of Us Research Program has endeavored to collect the health data of over 1 million Americans to ensure healthcare works for all of us. Are they close to 1 million participants? How has it helped boost research? Let’s look at five notable milestones the program has reached in its mission to build a health data network that looks like all of us. 1. Increasing the Variety in Research Participation With help from local community partnerships, including UT Health San Antonio, across the country, over 790,000 people nationwide have decided to join the program’s expansive and inclusive research network, the program announced in a recent news release. In addition, over 540,000 participants ...
El soldado del Ejército Estadunidense,Tony Rentas, oriundo/originario de Puerto Rico, quien había soñado toda su vida con servir en el Ejército, sufrió una convulsión durante una misión en Kosovo. A Tony le diagnosticaron un glioma de bajo grado, un tipo raro de tumor cerebral. No tenía ni idea de lo que era un glioma de bajo grado. Así que empezó a buscar en Google. Encontró poco que le ayudará a entender este diagnóstico y lo que significaba para él y su familia, y aún menos estaba disponible en español. Por eso Tony está compartiendo su historia y participando en el Registro Internacional de Glioma de Bajo Grado, que tiene como objetivo aprender más sobre las mejores formas de tratar estos tumores en diferentes grupos de personas, incluyendo a miembros ...
Durante su niñez en Puerto Rico, Tony Rentas soñaba con unirse al ejército de Estados Unidos. Quería servir a su país, dar un buen ejemplo a su hijo, y asegurarse que su familia tuviera el cuidado adecuado. En el 2009, se unió al Ejército de los Estados Unidos, haciendo realidad su sueño. Tony ejerció como especialista de inteligencia militar. A lo largo de una docena de años, fue desplegado dos veces, viajó alrededor del mundo, formó grandes amistades, experimentó diferentes culturas, ayudó a personas y proveyó para su familia. Luego, obtuvo una desgarradora noticia. Después de sufrir una convulsión del lóbulo temporal, Tony, -esposo y padre de dos hijos- fue diagnosticado con un glioma de bajo grado, un tipo de tumor cancerígeno en el cerebro, en junio del ...
Growing up in Puerto Rico, Tony Rentas dreamed of joining the U.S. military. He wanted to serve his country, set a good example for his son, and make sure his family was taken care of. In 2009, he joined the U.S. Army, making his dream a reality. Tony served as a military intelligence specialist. Over a dozen years, he deployed twice, traveled around the world, made great friends, experienced different cultures, helped people, and provided for his family. Then he got some harrowing news. After suffering a temporal lobe seizure, Tony – a husband and father of two children –was diagnosed with a low grade glioma, a type of cancerous brain tumor, in June 2020. “I remember walking out of that appointment, sitting in the car, just trying to process things. A couple of tears ...
This Healthy Vision Month in May, the National Eye Institute (NEI) is looking through a futuristic lens to bring awareness to eye health and share English and Spanish-language resources to protect the sight of your familia.
Eye health and mental health go hand in hand, especially for some Latinos who lack access to eye care.
“Reframe Your Future, aims to reach people with a visual impairment about steps they can take to thrive in their daily life, like seeking vision rehabilitation and mental health services,” according to an NEI news release.
Here is what you should know about taking care of eye health for you and your family. What is Low Vision?
Low vision impairs your ability to see.
It makes it difficult to do day-to-day activities such as reading, driving, or see a screen ...
How often do you think about your brain health? We can maintain our brain health with everything from exercise to quality sleep, but conditions such as brain tumors can affect the brain and disrupt our lives. For Brain Tumor Awareness Month in May, Salud America! at UT Health San Antonio is partnering with the Low Grade Glioma Registry to raise awareness of brain tumors, real people with brain tumors, quality of life, and caregiving among the Latino population. Follow along for a month of amazing content!
7 Things You Should Know About Brain Tumors
About 90,000 people are diagnosed with a primary brain tumor every year? For ourselves, our familia, and our comunidad, we should know a few important things about brain tumors so we can help all those impacted by a tumor ...
Often, Alzheimer’s and dementia caregivers put the needs of the person they are caring for above their own — neglecting their physical, emotional, and mental health in the process. While seen as a selfless act, when left unchecked, it can lead to depression. That’s why researchers at Texas Tech University are giving informal caregivers caring for a loved one with Alzheimer’s and dementia an opportunity to reduce their stress levels by offering free telehealth therapy. As part of the research study, eligible participants will meet once a week for 12-16 sessions with a therapist and fill out questionnaires and surveys before, during, and after therapy. These surveys are spaced out and only take 30 to 45 minutes to complete online, by mail, or over the ...
