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By Jason Resendez and Stephanie Monroe
UsAgainstAlzheimer’s Alzheimer’s Disease Disparities Engagement Network
This month is National Minority Health Month and across the country communities are reflecting on the numerous challenges and injustices people of color face when it comes to healthcare in the U.S.
For example, African Americans and Latinos face a higher risk for some of our country’s most common health problems, including obesity, heart disease, diabetes, hypertension, high blood pressure, stroke, Alzheimer’s and other dementias.
To understand and address these disparities, greater attention must be paid to the role of the social determinants of health like income inequality, housing and food security, and educational opportunity.
We know that this approach works.
In Mecklenburg County, North Carolina, a program supported by the Aetna Foundation called Village HeartBEAT (VHB) activated local faith-based organizations to help over 20,000 local residents access health resources and social services to reduce cardiovascular risk, a disparity experienced by black residents of Mecklenburg. As a result, VHB reduced smoking in the community from 17.4% to 13.9%, and obesity rates fell from 70% to 64.7%.
This progress demonstrates the importance of taking a comprehensive approach to addressing pressing health challenges. It also provides an example of how we must address Alzheimer’s disease, one of the most complex health challenges our nation faces.
This is a staggering reality that is poorly understood by many providers, lawmakers, healthcare advocates, and philanthropies.
Even less understood are the social determinants that contribute to this higher risk. For example, research by Dr. Jennifer Manly suggests that education, particularly the quality of schooling and literacy, has a strong influence on cognitive decline in later life among communities of color. Further, environmental exposure to pesticides and air pollution has also been linked to increased risk for Alzheimer’s.
Given that people of color are more likely to be exposed to pollution compared to non-Hispanic whites, this risk factor for Alzheimer’s disportionately impacts Latinos and African Americans.
These social determinants and comorbidities work together to weaken brain health and undermine the resiliency needed to fight cognitive decline. This results in a heavy healthcare and economic burden on communities of color.
Consider the facts:
- By 2030, left unaddressed, nearly half of all Americans living with Alzheimer’s will be African American or Latino.
- Alzheimer’s death rates among Latinos increased 107% between 1999 and 2014.
- African Americans make up 13.4% of the U.S. population, yet bear 33% of the national cost.
- By 2060, Alzheimer’s will cost Latino families a cumulative $2.3 trillion.
- Of the 8 million Latino family caregivers in the U.S., nearly 2 million provide care for someone living with dementia.
These statistics are only exacerbated by significant disparities in diagnosis rates, access to treatments, access to research, and limited health literacy.
Encouraging proactive brain health across the lifespan by addressing social determinants must be a goal moving forward for the Alzheimer’s movement and the greater healthcare community.
Specifically, we must:
- Increase community capacity to address Alzheimer’s and promote brain health equity by providing culturally tailored education, brain health literacy resources, and programming that targets African Americans and Latinos. These programs must be linked to social services to address the social determinants of brain health.
- Collect better data across subpopulations on the prevalence of Alzheimer’s and dementia, and deliver data-based insights to empower partners with information on how Alzheimer’s and other dementias are impacting communities at the zip-code level.
- Increase access to brain health research by developing community infrastructure to improve engagement, recruitment, and retention of underrepresented communities. As the conversation in the research community is dominated by precision medicine, we must also take a precision engagement approach to understanding the needs of underrepresented communities.
- Promote policy change to address systemic barriers to brain health equity and access, including enlisting cities and states as partners in advancing Medicaid reforms that promote prevention and early detection in managed care and provider activities. We must find mayors and governors willing to champion the issue and support the development of local strategies and policies. Early-adopter work could set the stage for dissemination of model legislation, best practices, and learnings among peers.
Despite the high prevalence and growing impact of brain health related diseases like Alzheimer’s on people of color, these health issues are often left out of our national conversation about health equity.
To address this, UsAgainstAlzheimer’s launched the Alzheimer’s Disease Disparities Engagement Network to mobilize communities and deliver equitable solutions to our shared Alzheimer’s challenge.
We are partnering with four former surgeons general of the United States – Drs. Richard Carmona, Jocelyn Elders, Antonio Novello, and David Satcher – along with the International Council on Active Aging and other mission-aligned organizations to bring needed attention to the dementia crisis.
So this National Minority Health Month let us all do our part to bring Alzheimer’s out of the shadows and put a spotlight on the social determinants of brain health.
As Martin Luther King Jr. once stated, “Of all the forms of inequality, injustice in healthcare is the most shocking and inhumane.”
Jason Resendez is the Executive Director of the LatinosAgainstAlzheimer’s Coalition, convened by UsAgainstAlzheimer’s. Stephanie Monroe is the Executive Director of AfricanAmericansAgainstAlzheimer’s, a network of UsAgainstAlzheimer’s. Together they co-lead the Alzheimer’s Disease Disparities Engagement Network (ADDEN).