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In the United States, 1.8 million people are living with or in remission from a type of blood cancer, either leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPNs).
A blood cancer diagnosis can bring up many worries, emotions, and even confusion.
That is why Blood Cancer United is aiming to help people with navigating their diagnosis journey with updated Survivorship Workbooks.
Let’s take a look into what these workbooks consist of and how they can help families and communities maneuver cancer diagnoses.
Workbooks Help Blood Cancer Patients Stay Informed
Blood Cancer United’s workbooks cover a range of topics related to blood cancer:
- Care plans
- Long term and late effects
- Healthy behavior recommendations
- Planning for the future and more
“Use this workbook to collect all the important information you need throughout diagnosis, treatment, follow-up care and long-term management of a blood cancer, according to Blood Cancer United.
Workbooks are available for adults, children and adolescents, and young adults.
All of the booklets are available in English and Spanish.
“Take this workbook with you to appointments. Fill out the worksheets with help from members of your healthcare team, as needed,” according to Blood Cancer United.
Additional Support Through Blood Cancer United
Through Blood Cancer United, patients can find Blood cancer Information Specialists.
These specialists are “U.S.-based, highly trained and licensed oncology social workers and nurses who are ready to help you or your loved one navigate a blood cancer diagnosis and connect you to financial and social support information.”
Patients can send an inquiry message here.
You can also send chat messages through the Blood Cancer United website.
Blood Cancer United can also be reached via phone call at (800) 955-4572 Monday to Friday, 9 a.m. to 9 p.m.
“Callers may request the services of a language interpreter. This service is available in more than 350 languages,” according to Blood Cancer United.
Getting the Cancer Care You Need
Navigating cancer can be challenging, especially when you start your journey to recovery.
One way to set yourself up for success is choosing a care team that will focus on your individual needs and take your background and beliefs into consideration.
That all begins with finding the best oncologist.
If you are in South Texas, use the Mays Cancer Center’s “Find a cancer care provider” tool to locate an oncologist that fits your needs and cancer type or find out more about healthcare opportunities in the community.
Salud America! also offers a community resource guide to help people who experience issues with the non-medical drivers of health.
Nationally, the American Society of Clinical Oncology’s website offers an oncologist database with oncologists based on specialty, board certification, and location.
The American Cancer Society’s website also breaks down the types of oncologists, considerations that should be made when selecting a provider, a resource to find providers that take Medicare, and much more.
By The Numbers
142
Percent
Expected rise in Latino cancer cases in coming years
