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The Critical State of Alzheimer’s and Dementia in Latinos



Alzheimer’s disease is a condition that impairs brain function and, over time, can cause memory, cognitive, and behavioral issues and eventually lead to death. The condition greatly impacts the health of the aging — especially Latinos. 14% of the American Latino population older than 65 are living with Alzheimer’s, compared with 10% of the White population. Alzheimer’s is projected to increase in older Latinos by 175% between 2018 and 2040, compared with a 32% increase in the White population, according to a new report, 2024 Alzheimer’s Disease Facts and Figures, from the Alzheimer’s Association. Let’s explore the data from the report. Alzheimer’s in America Nearly 7 million older Americans are living with Alzheimer’s disease as of 2024. That’s about the same ...

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Study: Only 1 in 5 Diagnosed with Cancer Seeks a Clinical Trial



The last thing a person wants to hear from their doctor is “You have cancer.”  Unfortunately, that’s the reality for the thousands of Americans, including many Latinos, diagnosed with cancer each year. After a diagnosis, people dealing with cancer discuss treatment options with their medical care team, which may include participation in clinical trials.  Clinical trials are studies with volunteers that test ways to find, prevent, and treat cancer and other diseases. They may also help improve the quality of life for volunteers affected by cancer or reduce the side effects of treatment.  Despite the benefits of participating in clinical trials, only about one out of every five (21.9%) people with cancer enroll in clinical research, according to a new study in the ...

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Latinos: Share Your Cancer Journey or Caregiver Experience 



Researchers at Texas Tech University are interested in learning more about you and your family caregiver's experience with advanced cancer.   The research team is seeking participation from people who are 18 or older, speak English, identify as Latino or non-Hispanic White, and have been diagnosed with advanced cancer (stages 3b-4).   Caregivers who want to participate must be 18 years or older, speak English, and identify as Latino or non-Hispanic White.  If you or your loved one meets these qualifications, you may be eligible to take part in this study, which consists of three different surveys.  These surveys will be spaced out and take 30 to 45 minutes to complete, and can be done online, by mail, or over the phone with the help of a research assistant.  The ...

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More Than Meets the Eye: How Surviving Colon Cancer Transformed Marielle Santos McLeod’s Advocacy Work



Marielle Santos McLeod thought she knew a lot about cancer care.  Years as a health professional had given her time to learn about cancer care and gain a closer look at the barriers Latinos face in getting equitable treatment.  That’s why, when the mother of four was diagnosed with colon cancer at age 36, she was shocked by just how little she really knew.  However, it was enduring the disease as a young Latina that guided her toward her life's purpose – serving as a patient advocate to uplift the voice of Latino cancer survivors.  “I love advocacy .... It's like one of the things that I'm convinced that I was put on this earth to do. I just had to get cancer to get to it first,” Santos McLeod said.  Spanish-Language Influence  Santos McLeod doesn’t believe ...

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5 Keys to Undoing the Drivers of Health Inequity



ChangeLab Solutions recently updated their interactive web tool, Undoing the Drivers of Health Inequity, with new resources to support policy strategies to advance health and justice. The tool points to five fundamental drivers of health inequity. “The fundamental drivers of health inequity are systemic factors that shape people’s physical and social surroundings in ways that create barriers to health,” according to ChangeLabs Solutions. “[We] use legal and policy strategies to undo the drivers of inequity by changing the distribution of resources and power.” Let’s explore this tool and how it can help Latino communities! 1. Structural Discrimination Some people, especially Latinos and other people of color, face health barriers because of structural and systemic ...

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La Representación Importa: The Need for More Latinos in Film, TV



After decades of underrepresentation, whitewashing, and villainizing, a spike of positive representation of ethnic minorities, such as Latinos, has swept into Hollywood and mainstream media. Latino pioneers like José Ferrer, Edward James Olmos, and Rita Moreno broke systemic barriers to play defining roles in an industry dominated by White actors, paving the way for future Latino actors and Latino-led projects to break from the mold. This success has led to a new wave of notable Latino standouts and projects. America Ferrera, a U.S.-born Latina of Honduran heritage, nabbed an Oscar nomination for Best Supporting Actress in Barbie (2023). Pedro Pascal, born in Chile, delighted audiences in the titular role of The Mandalorian before taking the lead in HBO’s TV adaptation of video game ...

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Diversity of All of Us Research Data Unlocks 275 Million New Genetic Variants



For the last few years, the National Institutes of Health’s All of Us Research Program has mounted an unprecedented effort to collect health data from 1 million people of all ages and ethnicities across the country for use in impactful scientific research. In fact, the data has led researchers to a shocking discovery — 275 million previously unknown genetic variants, according to a recent news release. Nearly 4 million of the variants are in areas that may be connected to risk for disease. The variants, uncovered using data shared by nearly 250,000 All of Us participants, put researchers in a position to better understand genetic influences on health and disease, especially in diverse communities often left out of research. NIH reported that half the genomic data came from Latino, ...

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First-Ever Cancer Patient Advocate Training Program Saves Seat at the Table for Latinos



Ahead of the 2024 Advancing the Science of Cancer in Latinos Conference, 15 Latina women from across the country came together, unified by a common thread — to become a research patient advocate. This gathering, on Feb. 20, 2024, marked the first in-person meeting of the Latino Cancer Patient Advocate Training Program, a new initiative to teach cancer survivors to become research patient advocates, who help others navigate the healthcare system and raise the Latino voice in research. Patient advocates are critical to the goal of reducing Latino cancer disparities, said Dr. Barbara Segarra-Vázquez of the University of Puerto Rico, co-leader of the new program. “You really have to have passion to become a patient advocate,” said Segarra-Vazquez. “It’s that desire to help ...

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