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Why is Organ and Sample Donation Important? Ask 3-year-old Jade Hércules and Her Family


Jade

Jade Hércules, was born in July 2012 in Guatamala, where she was diagnosed with terminal liver disease. She needed a donor. Jade's condition deteriorated over the next year to the point where her parents thought, as she celebrated her first birthday in July 2013, she wasn't far from her final moments on earth. Then doctors at University of Chicago Hospital, where her family had come to seek treatment, told her parents a liver donor was found. “We were grateful to God for the parents who had the courage to donate their little boy’s organs because thanks to them our little girl is alive. We always think about the parents who made this miracle possible because it is truly a blessing that a year later although she is not yet walking, Jade can stand and is such a happy ...

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‘Breast Friends Forever’: A Unique Support Group for Young Women with Breast Cancer


BFFs breast cancer survivor suppport group

Amy Cleveland, fresh out of college and just starting a career in marketing, discovered a coarse lump in her breast while putting on some tanning oil. Only age 22, she was diagnosed with breast cancer. “It was a struggle for me because I was young and there was no one my own age I could relate to or confide in about having cancer. People always say, ‘My mom had that,’ or, ‘My grandma had that.’ But it’s tough for young people,” Cleveland said. Fortunately, Cleveland—now age 28 and free of cancer—found some “Breast Friends Forever,” thanks to a unique support group for young breast cancer survivors in San Antonio (63% Latino) developed by the Institute for Health Promotion Research (IHPR) at the UT Health San Antonio and Susan G. Komen San Antonio. The ...

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Joan Treviño Lawhon’s Cancer Survivor’s Story: ‘My Choice was to Fight’


joan trevino lawhon nuestras historias

By Joan Treviño Lawhon I think women are blessed with a sixth sense. Recently, during a show on breast cancer survivors, several said they knew immediately that something was wrong. I could definitely relate. My basic tests were within normal limits, but I had what I can only describe as a “gut feeling.” I had some very supportive doctors who followed through on my instincts. It took five tests to confirm a malignancy. Within an hour of my diagnosis, I was at Barnes & Noble buying layman’s books on breast cancer. We can freeze and let the disease consume us, or we can fight. My choice was to fight. I was going to make sure my choice was an informed one. My husband Garey had lost his valiant battle to pancreatic cancer the year before. I lost a brother to kidney cancer. ...

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VIDEO: A Day in the Life of a Promotora


Guadalupe cornejo patient navigation promotora community health worker

To address the needs of cancer survivors, the LIVESTRONG organization created a cancer survivorship training curriculum to increase the number of community health workers, otherwise known as promotoras, and their skills, knowledge and confidence on the physical, emotional and day-to-day concerns of cancer survivors. To date, LIVESTRONG has trained more than 500 promotores across the country. What exactly is a promotora? Watch this video of Guadalupe Cornejo, a promotora at the Institute for Health Promotion Research at the UT Health Science Center at San Antonio, who explains what she does and who she helps. To see more of what a promotora does, watch a video, "A Day in the Life of a Promotora," in English subtitles or ...

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Now in Spanish: ‘Patient Navigation’ Manual


promotora patient navigator

Check out this Spanish version of A Patient Navigation Manual to guide health organizations in developing patient navigation services. Get it Spanish or English. The manual first defines patient navigation. Patient navigators are trained health workers who aim to help “navigate” people through the often-complex healthcare system and remove barriers to timely, quality cancer care. It then offers a six-step guide to determine whether navigation is right for a health organization, and highlights important considerations for implementing navigation. The manual also features many robust tools, customizable templates, and other resources for starting up navigation. “We are excited to offer, for free, this guide in both English and Spanish to help health providers and groups ...

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