Of course, no one wants to hear they have cancer. But if you or someone in your familia has a brain tumor, it is natural to wonder what life will look like. This is what we call “quality of life” (QoL), or an individual’s sense of well-being and ability to enjoy and participate in life. “For those living with a brain tumor, QoL may encompass a wide range of physical, psychosocial, and emotional concerns stemming from loss of functionality and changes in personality,” according to the National Brain Tumor Society (NBTS). From rehabilitation to mental health to return-to-work resources, let’s dive deeper into QoL and what it means for someone with a brain tumor. Access this resource in Spanish!
Facing a Brain Tumor Diagnosis
A brain tumor or other cancer ...
Por supuesto, nadie quiere escuchar que tiene cáncer. Pero si usted o alguien en su familia tiene un tumor cerebral, es normal pensar cómo será la vida con este diagnóstico. Esto es lo que llamamos “calidad de vida”, o el bienestar y capacidad para disfrutar y participar en la vida. “Para aquellos con un tumor cerebral, la calidad de vida puede incluir un rango amplio de dificultades físicas, psicológicas/sociales, y emocionales relacionadas a la pérdida de ciertas funciones y cambios de personalidad” según la Sociedad Nacional de Tumores Cerebrales (NBTS/SNTC). Desde la rehabilitación hasta la salud mental y recursos para volver al trabajo, profundicemos en la calidad de vida y qué significa para alguien con un tumor cerebral.
Enfrentando un ...
In recent years, researchers have made a larger effort to tap into previously underrepresented communities, such as communities of color, to create more inclusive research that benefits everyone. But many people still have deep-rooted mistrust of research. And not all researchers who work with these communities end up bringing the benefits of their research back to boost the health of those communities. The PATIENTS Program at the University of Maryland School of Pharmacy is attempting to rewrite the narrative and give researchers, patients, caregivers, and others the tools to provide a continuous patient-centered approach to research. The PATIENTS Professors Academy is a free, virtual training course centered around improving health equity and the health outcomes ...
Many Latino children have pressing mental health needs but are not getting adequate mental health care, studies have shown. COVID-19 didn’t help, either. The pandemic heightened social isolation, dependence on smartphones and social media, and mental health issues among young people. Meanwhile, opportunities declined for physical activity – a proven method for treating disorders such as depression and anxiety. Loss of physical activity can harm physical, emotional, social, and mental health. This is why a PhD student at Michigan State University is offering a free online program geared to increasing physical activity to improve mental health in Latino children between the ages of 7 and 11.
About the Physical Activity Program
The program is part of a ...
El soldado del Ejército Estadunidense,Tony Rentas, oriundo/originario de Puerto Rico, quien había soñado toda su vida con servir en el Ejército, sufrió una convulsión durante una misión en Kosovo. A Tony le diagnosticaron un glioma de bajo grado, un tipo raro de tumor cerebral. No tenía ni idea de lo que era un glioma de bajo grado. Así que empezó a buscar en Google. Encontró poco que le ayudará a entender este diagnóstico y lo que significaba para él y su familia, y aún menos estaba disponible en español. Por eso Tony está compartiendo su historia y participando en el Registro Internacional de Glioma de Bajo Grado, que tiene como objetivo aprender más sobre las mejores formas de tratar estos tumores en diferentes grupos de personas, incluyendo a miembros ...
U.S. Army soldier Tony Rentas, a native of Puerto Rico who dreamed of serving in the military all his life, had a seizure while on a mission in Kosovo. Tony was diagnosed with a low grade glioma, a rare type of brain tumor. He had no idea what a low grade glioma was. So, he started Googling. He found little that helped him understand this diagnosis and what it meant for him and his familia, and even less was available in Spanish. That is why Tony is sharing his story and participating in the International Low Grade Glioma Registry, which hopes to learn more about the best ways to treat these tumors across different groups of people, including members of the Hispanic/Latino community. “One of the biggest things that I wanted to do is help people as much as I can,” Tony ...
We know little about which transportation investments or initiatives are reducing transportation barriers and meeting people’s transportation needs. For example, are Complete Streets policies meeting the needs of community members? As Smart Growth America releases its best practices to evaluate the success of Complete Streets efforts, we at Salud America! want to draw attention to how transportation needs and barriers have been conceptualized. Across the fields of urban planning, public health, and health care are claims about how transportation impacts health and quality of life. However, regarding these impacts, transportation is often conceptualized only in terms of physical activity, pollution, safety, and/or access to medical care. Although transportation is often ...
Where you live can have a big impact on your health. Non-medical factors like where we are born, live, work, and age — known as social determinants of health (SDoH) — can influence health for better or worse. However, the U.S. has struggled to identify and help people with SDoH issues. That's where SDoH screening comes in. SDoH screening is a questionnaire given to patients in a healthcare setting to help providers identify non-medical barriers to health. These include issues like financial hardship, transportation, housing, food, employment, and safety. Patients can then be referred to helpful community resources. Here are seven reasons to implement SDoH screening in your healthcare system, hospital, or clinic.
1. SDoH Screening Helps Patients Speak Up
SDoH ...
This Healthy Vision Month in May, the National Eye Institute (NEI) is looking through a futuristic lens to bring awareness to eye health and share English and Spanish-language resources to protect the sight of your familia.
Eye health and mental health go hand in hand, especially for some Latinos who lack access to eye care.
“Reframe Your Future, aims to reach people with a visual impairment about steps they can take to thrive in their daily life, like seeking vision rehabilitation and mental health services,” according to an NEI news release.
Here is what you should know about taking care of eye health for you and your family. What is Low Vision?
Low vision impairs your ability to see.
It makes it difficult to do day-to-day activities such as reading, driving, or see a screen ...
